This content originally appeared on diaTribe. Republished with permission.
By Jewels Doskicz & April Hopcroft
Key takeaways:
Self-advocacy is important before having surgery with diabetes – be sure to ask questions about your diabetes management before, during, and after your procedure.
Some diabetes medications, like SGLT-2 inhibitors and GLP-1 receptor agonists, may need to be stopped up to one week before surgery.
Keeping your blood sugar in range can reduce the risk of infection and complications before, during, and after surgery.
When Caitlyn Peterson of Flagstaff, Arizona – an English as a Second Language educator who has lived with type 1 diabetes for 25 years – recently needed emergency surgery for a fractured ankle, she was more worried about her diabetes in the hospital than the surgery. Being knowledgeable about her own care, she made sure to communicate everything about her diabetes needs to the medical team before the surgery.
Peterson was most worried about experiencing hypoglycemia (low blood sugar) while under anesthesia in the operating room. When she voiced her concerns and her anesthesia provider explained their management plan, she began to relax about the surgery. But the experience itself, whether planned or unplanned, is different for each person, and there are things to be aware of, especially for a person with diabetes.
Self-advocacy
Over 38 million Americans live with diabetes (about 11% of the population), and many will require surgery in their lifetime. And whether someone has type 1 or type 2 diabetes, communication is an important part of the surgical experience. Advocating for yourself or a loved one is an important part of living with a chronic condition, because when others make decisions without your input – there may be assumptions and actions that don’t fully fit your needs.
Familiar forms of self-advocacy include:
Educating others about your health condition
Teaching others about the medical technology you use and how it works
Communicating about questions or concerns related to your individual situation
Understanding your rights as a person with diabetes
Preparing for surgery with diabetes
Although diabetes awareness is growing, not all providers have frequent exposure to diabetes technology, such as continuous glucose monitors (CGM) and insulin pumps, along with the specific protocols that need to be taken into account.
“I’m continuously educating others about type 1 diabetes – even in the case of surgery,” said Peterson. “We can’t assume that providers know what’s best for us as individuals.”
Dr. Michelle Grua, an anesthesia provider at Valley Children’s in Fresno, California, with 28 years of adult and pediatric experience, said that people with diabetes should advocate for the use of their own technology during their hospital stay.
“This can happen by being proactive and educating the anesthesia provider about your management,” she said.
When using an insulin pump, removing it will stop the delivery of your basal insulin and increase your risk of diabetic ketoacidosis (DKA) if you’re not started on an IV insulin drip or receive a basal insulin injection.
Grua added that while anesthesia providers are very careful in measuring blood sugars throughout the phases of surgery, you should not hesitate to ask questions.
Here are a few to get started:
What type of anesthesia will I be receiving and do I have any options (general, nerve block, IV sedation, or local anesthesia)?
At what intervals will my blood sugar be measured during the procedure?
Can I keep my insulin pump and CGM on in the operating room?
Does the hospital have a protocol for insulin management throughout surgery?
How will my blood sugar be managed during surgery and after surgery in the recovery room?
Do you have any questions about how my CGM and pump work?
Emergency vs. scheduled procedures
While some procedures may allow time for planning, others may not. “Unplanned surgery can be more anxiety-provoking when you don’t have the time to think things through,” said Peterson.
If you’re in an accident, or have a sudden illness that needs immediate surgery, there’s not much time for forward thinking. Here are some precautions you can take to be prepared in case of an emergency.
If possible, have a friend or family member gather your medical supplies (glucometer, CGM, pump supplies, insulin) – if your infusion site or CGM is in the way of the surgical procedure, it may need removal.
Have a list of your current medications, supplements, and any allergies in your phone or wallet. If you wear an insulin pump, know your total daily dose of basal insulin in case you need to remove your pump and receive an injection.
It also helps to know your insulin-to-carb ratio and your correction factor. This will help the health care team dose meal time and correction insulin.
Have a healthcare proxy. This is a legal document that allows you to designate a care partner to make your care decisions in the event that you are incapacitated. Ensure that this trusted individual has ready access to the document.
Preoperative instructions
Your surgeon and care team will give you specific instructions in advance of the procedure. If you don’t agree with the instructions, or are uncertain about your diabetes plan, ask your endocrinologist or primary care provider for support. It’s never too early to reach out for clarification.
Before surgery, know:
How to make necessary adjustments to your diabetes medications
When to stop eating and drinking
What to do if you experience low blood sugar levels during your fasting period
Who to contact with concerns as surgery approaches
How your blood sugar will be monitored and managed in the operating room
Although some people with type 2 diabetes may take insulin, many do not. Oral and non-insulin injectable medications are common, each of which may have special precautions or need adjustments before surgery.
“There are different reasons for not taking oral diabetes medications,” Grua said. “But most are stopped before surgery, and patients are aware that if they take them within 24 hours of their surgery, it may be canceled.”
Certain medications can cause issues during a procedure, so share an accurate medication list before any procedure. For instance, metformin can cause kidney issues and other medical concerns during surgery, while sulfonylureas can increase insulin production and can cause hypoglycemia when fasting. Additionally, it is recommended that people on an SGLT-2 inhibitor stop their medication at least three days prior to the surgery.
If you’re taking a GLP-1 receptor agonist, you may need to stop taking the medication in advance of your surgery. The American Society of Anesthesiologists (ASA) recommends stopping your GLP-1 one week prior to surgery if you’re on a weekly medication (such as Ozempic or Trulicity). If you’re taking a daily GLP-1 (such as Victoza), the ASA guidelines recommend stopping the medication on the day of your surgery.
A 2024 study that examined over 130 million U.S. adults with diabetes found that there was no increased risk of complications in GLP-1 users during or after surgery with general anesthesia. These results suggest that healthcare providers need to carefully weigh the advantages and disadvantages of stopping a GLP-1 prior to surgery. Be sure to consult your healthcare provider if you have questions about the risks and benefits of stopping a GLP-1 medication before surgery.
Why can’t you eat and drink before a procedure?
When a person has to be on anesthesia, it affects the body’s reflexes. With the body’s muscles relaxed, anything in the stomach can come back up and enter the lungs.
For a planned surgery, ask to be scheduled for the surgery early in the day if possible. This can help to shorten the waiting period of not eating and decrease the chances of low blood sugar during the fasting period or during the surgery.
Reduce surgical risks
Keeping your blood sugar values in range before, during, and after surgery can help decrease your risk for infection and other complications. Researchers have shown that high blood sugar values are associated with delayed healing and increased infection rates. Blood sugar and A1C values are measured before the operation.
“Knowing what these goal values are will help you to be prepared and approved for surgery. If not, surgery may be canceled — even on the day of,” Grua added. “Whether you have type 1 or type 2 diabetes, having the best possible A1C, and arriving for surgery with a blood glucose level less than 200 mg/dL, is the goal. The value that’s most likely to lead to a surgery cancellation is a blood glucose that’s 250 mg/dL or higher on the day of surgery.”
Having a surgical procedure may increase blood sugar levels because of emotional stress, anesthesia, and the trauma of the surgery itself. And while everyone has a risk of infection, research suggests that people with diabetes may be at higher risk of:
Slower healing
Increased infection rates at the surgical site
Secondary infections, such as a urinary tract infection or pneumonia
Increased variability of blood glucose values
Be on the lookout for signs and symptoms of infection
Once surgery is complete, it’s especially important to keep your eye out for any signs or symptoms of infection. Be sure to contact your healthcare team about any questions or concerns you may have.
Signs and symptoms of infection may include:
Fever or chills
Increased pain, redness, or tenderness around the surgical area
Pus or smelly drainage from the surgical site
The bottom line
Having surgery can be a scary experience, especially when you have chronic conditions like diabetes. With some extra preparation and questions to your healthcare team, you can navigate procedures while keeping your glucose levels in range. Practicing diabetes care to keep your blood sugar in range before, during, and after surgery goes a long way toward reducing your risk of complications and ensuring a faster recovery.
Learn more about managing diabetes in the hospital:
Lessons Learned from A Scary Visit to the Emergency Room
Zoning in on Sick Day Management: Practical Tips, Strategies, and Advice
My Appendix Ruptured: Scary Lessons Learned About Diabetes in the Hospital